The following Internet web sites are listed for your convenience. This is not all-inclusive, nor should it be considered an endorsement of the accuracy of, or support for, the information/views expressed in each site.
Maine Cleft Lip and Palate Program - Assisting Maine families with services and treatment for infants, children and youth with Cleft Lip/Palate
Telephone: (800) 698-3624 in Maine
22Support Group Links - National list of support groups
The International 22q11.2 Foundation - Information and support for individuals and families dealing with 22q11.2
AboutFace - Provides information and emotional support for individuals with facial differences and their families by linking people with similar experiences through a Peer Network.
Offers a newsletter and publications.
Telephone: (416) 597-2229 or 1-800-665-FACE
Cleft Advocate - Online source for education and inspiration
Cleft Palate-Craniofacial Association (ACPA)
Cleft Palate Foundation (CPF) - Operates a 24-hour hotline assisting parents and adult patients with questions about cleft lip and palate and other craniofacial anomalies. Distributes free educational publications, access feeding support.
Telephone: (800) 24-CLEFT
Wide Smiles - WIDE SMILES was formed to ensure that parents of cleft-affected children do not have to feel alone. They offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting.
Maine Parent Federation, Inc. - An agency for parents, parent organizations and professionals to work together to serve children with disabilities and their families.
Telephone: (800) 870-7746 or (207) 623-2144
Child Development Services (CDS) - The Child Development Services (CDS) system is an Intermediate Educational Unit that provides both Early Intervention (birth - two years) and Free Appropriate Public Education (FAPE for ages three - five years) under the supervision of the Maine Department of Education.
Call above number for your local CDS site.
Telephone: (207) 624-6660
Disability Rights Center - Disability Rights Center (DRC) is Maine's protection and advocacy agency for people with disabilities. It is a non-profit agency independent of state and federal government.
PO Box 2007
24 Stone St.
Augusta, ME 04338-2007
Telephone: (800) 452-1948 (207) 626-2774
Let's Go! - 5210 Tips, suggestions, recipes to help give you the tools to get started on your journey to good health!
KidsHealth - Site designed for parents, children and teens with lots of good advice and activities
AdoptCleft – Adopting cleft affected children group website
Facing Maine - Nonprofit that supports, connects, and advocates for persons and families with children affected by cleft and craniofacial conditions in the State of Maine.