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Children's Behavioral Health ServicesPrivacy Policy # 03-AP-17Issued: 8/21/03 A. Introduction: Policy, Background, and ScopePolicyBH is responsible for the maintenance of confidentiality concerning private information, whether consumer, employee, or administrative in nature. This information shall be specifically and formally protected and managed through the design, development, implementation, and administration of policies and procedures, technical controls, and education. All systems and staff, whether in fiscal, quality improvement, administrative, direct service, or other roles, must adhere to this policy and to the laws and regulations regarding access to and use of information. This policy addresses the collection, use and maintenance of identifying information about DHHS clients. BH recognizes and protects the rights of the individuals it serves, including their right to control the use and dissemination of their personal and confidential information. DHHS prohibits access to and collection, use, or disclosure of identifiable information except with the documented informed consent and/or authorization of the consumer or guardian, or as explicitly permitted by State or Federal legislation or regulation. Such use of information will be limited to the minimum necessary to accomplish the stated purpose. It is based on the following premises:
BackgroundThis policy addresses the privacy, availability, and integrity of information and is based on State and Federal laws and regulations, DHHS policies and practices, professional ethical codes of conduct, and exemplary policies used by other states and organizations. It does not supersede State and Federal laws and regulations that are more protective of individual confidentiality. Nor does a familiarity with this policy substitute for a knowledge of these relevant laws and regulations. ScopeThe following policy and procedures are intended to serve both as a policy statement and as a guide to DHHS staff and others involved in its work. It applies to all Departmental staff and other individuals, such as interns, volunteers, consultants, and other contractors involved in departmental work, who might gain access to confidential information. It covers all DHHS service populations and services and all information regardless of format (oral, signed, electronic, or written) unless otherwise specified. Exceptions occur most frequently with confidentiality requirements in substance abuse programs and are specifically noted in this policy. This policy assures the ongoing development, implementation, monitoring, and evaluation of these and related policies and procedures, systems, and practices, as well as an information training/education program for both existing and new employees. B. DefinitionsAs used in this policy, the following terms are defined as below:
C. Policy/Guidelines1 Generala) All DHHS employees are responsible for the maintenance of confidentiality about private information, whether consumer, employee, or administrative in nature. All staff, whether in fiscal, quality improvement, administrative, direct service, or other roles, must understand the specific guidelines governing confidentiality. b) When DHHS standards and guidelines do not clearly specify appropriate action or when there is doubt regarding confidentiality or disclosure of information, DHHS employees must consult their supervisors or designees before disclosing information. c) DHHS employees shall not solicit private and confidential information from a client or collateral contact unless it is essential for the provision or administration of services, conducting client and program evaluations, quality improvement activities, or research, as applicable given the employee’s specific job responsibilities at the time of solicitation. d) DHHS employees must discuss with clients and other interested parties the nature of confidentiality, client rights, and system limitations regarding confidentiality, as well as the circumstances when such information could be requested or required. [Rights of Recipients IX; 34-B MRSA §5607] e) The requirement to maintain the confidentiality of client information extends beyond the length of the employment of BH employees and beyond the life of the service recipients. [42 CFR §2.2] f) If a client is deceased, that client’s information may be released to their personal representative or, upon authorization, to the next of kin. [34-B MRSA §1207(1)(D); 42 CFR §2.15(2)(b)(1)] g) DHHS employees shall treat secondary confidential information (information shared by colleagues or other providers in the course of their professional interactions) with the same responsibility, ethics, and under the same guidelines as primary confidential information. h) DHHS employees shall protect client privacy to the best of their ability and shall include only information directly relevant to the delivery of services and treatment in their documentation and data collection. i) In a substance abuse program, when substance abuse treatment or referral is offered in conjunction with mental health treatment or mental retardation services, the entire record will be treated as a substance abuse record unless the substance abuse portion is separated from the rest of the record. [42 CFR §2.12(e)(1)] j) DHHS employees shall not acknowledge any knowledge of clients, their presence, or any service provision to them unless there is a signed release giving permission to do so. [34-B MRSA §1207]
2 Informed Consenta) DHHS employees must respect, promote, and assist all clients with the informed consent process regarding releases of confidential information. b) Clients must be informed about the laws, rights, and regulations that protect client records and be given a written summary of this information. [Rights of Recipients IX; 34-B MRSA §5607; 42 CFR §2.22] c) DHHS employees shall use clear and understandable communication regarding the limitations, risks, and benefits associated with requests for and releases of information. This applies to information in all formats, such as written and oral information, audiotapes, videotapes, and photographs. This communication shall include the following:
d) If the client has any difficulty understanding this information, reasonable steps shall be taken to assist the client’s comprehension, which may include the use of interpreters, translators, or other written, oral, symbolic, or gesture-based explanations. [Americans with Disabilities Act; Maine Human Rights Act; Rehabilitation Act of 1973; 45 CFR Part 84] e) If a client lacks the capacity to decide whether to release confidential information, a guardian or appropriate third-party who appropriately represents the client’s desires and interests must be consulted. Even in these circumstances continuous attempts must be made to engage and explain these decisions to the client. [34-B MRSA §5607; 42 CFR §2.15(a)(1)] 3 Release of Informationa) DHHS employees may disclose confidential information when an emancipated minor, competent adult client, or person legally authorized to consent for a client has signed a release of information form. If unable to sign, individuals may specify approval by using their initial or stamp. [34-B MRSA §1207(1)(A)]
b) The original copy of the release used to secure the information shall be kept in the client record. If a release must be faxed due to an emergency, the faxed copy should be followed promptly by mailing a copy of the original. c) Whenever a release of information is authorized by the client’s guardian or holder of a durable medical power of attorney, a photocopy of the guardianship order or the power of attorney document shall be kept in the client’s record.
d) Information being released shall be stamped or marked to indicate that it may not be re-released by the person receiving it without permission from DHHS. [42 CFR §2.32]
e) If a release is not correctly filled out, has blanks, or is on an invalid form, it is unacceptable. The incorrect release shall be returned to the sender with a correct form (if needed) along with directions as to what areas must be corrected to have the release honored and the information released. f) Information released must be limited to that of which the staff has direct knowledge or which is within their area of expertise and training as a professional. For example, it would be inappropriate for a caseworker who has a signed release to talk with a client’s family member to interpret what the doctor meant by a note he wrote in the client’s chart. g) A provider may refuse to release a mental health record to legally responsible parents, guardians, or providers when access to the records could cause danger to the physical or mental well-being of the client. [Rights of Recipients IX(K)(3)(a)] h) In the event of divorce, both parents have an equal right to access the child’s record unless the court has ordered otherwise in the divorce decree or subsequent order. A stepparent does not have the power to access or release information for a stepchild unless the stepparent is the adoptive parent of that child. A copy of the adoption order shall be kept in the child’s record. i) When a minor is incarcerated, the correctional facility professional responsible for the child can authorize the release of information for services received in a mental health program but not in a substance abuse program. j) Releases must note if the release is a partial release of confidentiality. k) Releases must not exceed a 12-month period. If no time frame is specified on the release, the release’s duration will automatically be limited to a 3-month period. l) Where a request for release of confidential information involves a combined record of more than one individual, such as in the case of a family therapy record, the information released shall be specific to the individual who signed the release. It must not include information about the other family members mentioned in the record. This can be done by a written summary of that specific client’s information or by getting releases signed by all the individuals who have the capacity and are part of the record. [Rights of Recipients IX(I)]
m) Disclosure of confidential information shall be limited to the minimum information needed to achieve the desired purpose. It shall be limited to information that is directly relevant to the purpose for which the disclosure is made. In no instance, shall the information released exceed what has been authorized for release. n) In a substance abuse program, minors who have requested substance abuse treatment for themselves have a right to confidentiality. Federal law requires that their records be withheld from their parents unless the minor consents to the disclosure. Substance abuse information may be released if the minor lacks capacity to make a rational decision, as determined by the program director, and if the disclosure would prevent a life-threatening situation jeopardizing the health of the minor or anyone else. [42 CFR §2.14]
o) State law allows a minor to request mental health or substance abuse treatment for themselves without their parents’ permission. The minors are considered financially responsible for the cost of this treatment. The use of a parent's insurance to pay the minor’s bill is not allowed unless the minor has signed a release. [42 CFR §2.14] p) In circumstances where a minor’s consent to treatment is accepted as permission to treat, the minor must also be the one to authorize the release of information. q) Requests of information regarding test results for HIV, tuberculosis, or sexually transmitted disease must have a clear and specific release in writing explicitly requesting this type of information before the information can be released, except when release is required by law. [22 MRSA §§815, 822, 824] r) Information likely to result in employee disciplinary action may not be released to the Office of Advocacy until that action has been resolved, including all appeals, and only when the result is disciplinary action imposed on the employee. [5 MRSA §7070] s) A record of all disclosures shall be maintained in the record for the life of the record and be available to the client upon request. This includes disclosures authorized and not authorized by the client. 4 Revocation/Change of Releasea) Clients must be informed of their right to withdraw or modify consent for release of confidential information and to change time frames covered by the release or the nature of the information being released. b) Oral withdrawal of a written consent must be dated and documented on the release form(s) and the original kept in the client’s record. 5 Release Exceptionsa) While continuing to support the well-being of their clients, DHHS employees have certain responsibilities to the client and society that supersede the responsibility of maintaining client confidentiality. These include mandated legal obligations, including State and Federal laws and regulations, and the need to respond in emergency circumstances, which may require some information disclosure without a client’s consent.
b) A release without consent may occur in the following circumstances:
6 Court Proceedingsa) DHHS employees must protect the confidentiality of clients during legal proceedings to the extent permitted by law. b) If a subpoena for confidential client information is received, the sender should be informed that information is not available without a court order or a signed release. c) If a court order is received to appear and testify with documents, the BH employee will appear and inform the judge of the relevant statutes and regulations regarding confidentiality and let the judge decide what information will be produced and how it will be handled. d) The court may also be asked to examine the records “in camera” to avoid disclosure of sensitive information. e) If the release of confidential information could cause injury to a client, this fact shall be made known to the court so that appropriate limits to the order can be imposed by the court, up to and including keeping the records sealed and unavailable for public inspection. f) Information from substance abuse program records cannot be used to initiate a charge or substantiate a criminal act unless the court has ordered that it may. 7 Securitya) Employee access to identifiable client data shall occur only when there is a relationship and/or a responsibility that allows for such access. It must be on a professional “need to know” basis, so that access to confidential information is limited to that needed for employees to perform their job functions. For example, a person who provides transportation for a client does not need to know the client’s medical history when it does not affect the transportation.
b) DHHS employees shall not discuss confidential information in places where they could be overheard by those not authorized to have the information. c) Use of cell phones, 2-way radios, e-mail, faxes, answering machines, and other electronic forms of communication shall not include confidential client information except when there are safeguards in place to prevent unauthorized access.
d) Once access to confidential computerized information has been opened, the computer equipment (desktops, laptops, hand-held devices, etc.) must not be left unattended, unless appropriate security measures are in place to protect the confidential information. e) Computer screens shall be turned away from doorways or areas where unauthorized viewing could occur. f) Paper records, computer discs, or any form of stored client information shall not be left out on desks or in unsecured locations. They shall be stored in locked file cabinets and in secure locations and shall be unavailable to people not authorized to have access. g) Client information shall be protected so that, whatever its storage format, it is protected from fire and water damage. In addition, where held electronically, client information must be maintained with complete backup files. h) Transfer or disposition of records for research must be done in a way that protects client confidentiality and is consistent with State statutes or regulations regarding record disposition. i) Original records are not to be removed from the DHHS site unless needed for the compliance of a court order and then only when a certified copy is not acceptable. If the original record is removed, a complete certified copy of the entire record must be retained. j) When anyone, other than staff, review original health service records, they must be supervised to assure that no documents are removed from the record and no changes are made to it. 8 Client Accessa) DHHS employees must provide their clients with reasonable access to their own individual records. [Rights of Recipients IX(A), IX(K)(1)] b) If there are concerns that the access could cause harm to the client, a qualified individual must provide assistance in interpreting the record. The records may also be sent to a mental health professional of the client’s choice to supervise the review. This must occur within 3 working days after the request. [Rights of Recipients IX(K)(3)(a)]
c) When a client is denied a review of his/her complete record because one or more sections are deemed to be detrimental, the client shall be allowed to review, to the maximum extent possible, any portions of the record that will not be a detriment to his or her health. The reason for the denial and an explanation of how the client would be harmed shall be documented in the client’s record. [Rights of Recipients IX(K)(3)(b)] d) If after the review of a record, the client wishes to submit corrective or additional information to the record, this information shall be placed in the record. [Rights of Recipients IX(K)(7)] e) Inability to pay the reasonable cost for the copy of the record shall not be justification for denying the client a copy of their record. [Rights of Recipients IX(K)(6)] f) Access shall be limited to the record(s) or portions of the record(s) that originate from DHHS as the source unless the primary source has not required continuing confidentiality or has not been promised that DHHSwill restrict re-disclosure. [Rights of Recipients IX(K)(8)] g) When information from secondary sources that cannot be re-disclosed exists in a client’s record, the client should be informed of those portions of the record and of how to access them by contacting the originator of the material. Clients shall be helped to do this if they wish. The client’s request and the response to it shall be documented in their file. [Rights of Recipients IX(K)(8)] h) Clients must be notified at admission or intake to a facility or program about their rights to access their record. This includes but is not limited to the following: {Rights of Recipients IX(C),(D),(E)]
i) If it is determined that a record review may have harmful effects, the review will be supervised by the Clinical Director or designee. j) If access to information by a guardian could cause imminent danger, a decision to refuse all or any part of the record to the guardian or client may occur and must be documented in the record. k) Limited guardianships allow for access only to the part of the record directly related to that guardianship (e.g. medical guardianship allows access to medical information.). 9. Anonymous Informationa) If anonymity is requested by an information source, the name of the person requesting anonymity shall not be entered into the record. b) If the nature of the information would reveal the source, this shall be considered before the decision is made to make the information a formal part of the record. 10. Research, Evaluation, and Traininga) In consultation, teaching, or research situations, de-identified information, rather than identified information, shall be used to the greatest extent possible. b) In clinical evaluation or research, the DHHS employees involved must obtain written informed consent and signed releases of information from participants. They must consider with due regard the clients’ well-being, privacy, and dignity throughout the process. c) Substance abuse law does not require consent for identifiable information in substance abuse programs when used in research or evaluations. Similarly, mental health law allows for identifiable information to be used without consent, but with the approval of the Commissioner, for statistical compilation/analysis for administration, planning, or research purposes. In neither instance shall identifiable information be disseminated or otherwise made public. d) Information disclosed for evaluation and research shall be limited to what is needed to accomplish the task for which it was accessed. e) If participants in evaluation and research are unable to provide consent, an appropriate legal proxy may provide consent, such as their guardians. Any exceptions to this process must be previously evaluated and approved by the DHHS Commissioner and the Institutional Review Board (IRB). f) External use of any information post research must be de-identified. Use of any research findings should be for professional purposes and in a professional context. g) Access to information being collected in the course of a clinical trial may be denied to a client while the trial is in progress if the IRB has approved the denial of access and the client agreed to the denial of access when consenting to participate. 11. Unlawful Disclosure of Mental Health Recordsa) If a DHHS employee or a contracted or licensed service provider unlawfully discloses mental health, mental retardation, or substance abuse information, they may be subject to a law suit, loss of professional licensure, or the imposition of criminal penalties of up to 364 days in prison and/or fines imposed on the individual of up to $2000, and as much as $10,000 for their organization. More stringent Federal penalties may also be imposed. 12 Employee Information Access Protocola) Prior to receiving access to confidential/identified employee and/or consumer information, employees must complete the following:
b) All interns, volunteers, contractors, and other persons requesting access to confidential information in the performance of departmental work must adhere to the same access protocol required of employees.
¹ National Information Infrastructure Advisory Council, "Common Ground: Fundamental Principles for the National Information Infrastructure, "March 1995 in "Telemedicine Report to Congress, "January 1997. |
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