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Children's Behavioral Health Services
Web Links of Interest
*The following Internet Web Sites are listed for your convenience. The list is not all-inclusive, nor
should it be considered an endorsement of the accuracy of, or support for, the information/views expressed
in each site.
Statewide Family Support Organizations
- 2-1-1
Maine
 -
is an easy to remember, phone number and website that
connects individuals to comprehensive vital health and
social service information and resources. Services are
available 24 hours a day, 7 days a week.
-
Access Maine
Phone: toll free - (800) 800-4876 ext. 4015 or (207) 780-4015
E-mail: accessmaine@usm.maine.edu
Website: http://www.accessmaine.org/index.htm
- Adoptive
and Foster Families of Maine - Adoptive and Foster Families of Maine, Inc. (AFFM) provides support
services for adoptive, foster parents and kinship providers. AFFM
provides the training, guidance; knowledge and resources needed
to handle complex issues as families open their hearts and homes
to children.
- Autism
Society of Maine - The Autism Society of Maine invites you to join families
and professionals in the pursuit of knowledge and understanding
of autism spectrum disorders, treatments and support of
Maine children and adults with autism. The ASM provides
information, referral and advocacy services. Other activities
sponsored by ASM include presentations and workshops, statewide
newsletter, annual meeting, family weekend retreat and summer
camp program.
- Maine Developmental
Disabilities Council - Pervasive Developmental
Disorder, Mental Retardation, Down's Syndrome, Autism,
Cerebral Palsy Learn about the different spectrum disorders,
latest in research, autism causes, and search autism
books to extent your knowledge.
- G.E.A.R.
(Gaining Empowerment Allows Results) Parent Network - G.E.A.R. exists to facilitate contact between parents
to prevent isolation and share knowledge gained by experiences
with our children's disabilities and contact with the
system of care.
- Maine
Parent Federation - A statewide organization that provides information, advocacy,
education, and training to benefit all children. We promote
individual aspirations and community inclusion for people with
disabilities.
- NAMI
Maine - NAMI Maine offers support to families whose children have
mental illness or an emotional/ behavioral disorder. These
disorders include: Autism, Anxiety and Panic Disorder, Asperger's
Syndrome, Attention Deficit Hyperactivity Disorder, Conduct
Disorder, Major Depressive Disorder, Bipolar Disorder, Pervasive
Developmental Disorder, Post Traumatic Stress Disorder,
Schizophrenia, Tourette's Disorder, and Dual Diagnosis.
- University
of Maine Cooperation Extension's Center for Parenting
Education - The Growing Years is an age-paced child development newsletter mailed free
of charge to any family in Maine with a child five years old or younger.
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National Resource Links
- Children's
Defense Fund/MH Resource Kit - This Children’s
Mental Health Resource Kit is designed to help you promote
access to and the availability of mental health screens
and assessments for children in your state.
- Zero
to three - The national resource on the first years of life
- Autism
Society of America -
Leading voice and resource of the entire autism community
in education, advocacy, services, research and support
- What
is Asperger Syndrome? - (from O.A.S.I.S) Online
Asperger Syndrome Information & Support
- AS-IF - Personal narrative of a person who was
diagnosed with Asperger Syndrome
- FAS
Community Resource Center -
Information about Fetal Alcohol Syndrome (FAS) and Fetal
Alcohol Spectrum Disorders (FASD)
- Healthfinder -
Locate prevention information on any health topic
- Health
Information for Children with Developmental Disabilities -
- Kinship
Care/family Connections - Family Connections
assists grandparents, aunts and uncles who are stepping in to care for relatives' children.
- Maine
Cite Coordinator Center - Maine CITE is a statewide
project designed to help make assistive and universally designed technology more available to Maine
children and adults who have disabilities.
- International
Rett Syndrome Association - IRSA has
disseminated timely, accurate, objective information on Rett syndrome throughout the world to people
who need information and resources and to researchers who can make a difference plus a lot more.
- National
Association for Dually Diagnosed - NADD is the leading
North American expert in providing professionals, educators, policy makers, and families with
education, training, and information on mental health issues relating to persons with intellectual
or developmental disabilities.
- Child
Welfare League of America - CWLA is an association of more
than 900 public and private nonprofit agencies that assist more than 3.5 million abused and neglected
children and their families each year with a range of services.
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Health
Promotion and Disability Prevention Websites of Interest
- American
Academy of Pediatrics - pediatricians committed to the attainment of optimal physical, mental,
and social health and well-being for all infants, children, adolescents, and young adults
- Alliance
To End Childhood Lead Poisoning - a national, nonprofit,
public interest organization working to prevent and eliminate
hazards in our homes that can harm the health of children,
families, and other residents
- The
Fetal Alcohol Syndrome Prevention Office - Fetal alcohol
spectrum disorders (FASDs) is an umbrella term describing
the range of effects that can occur in an individual whose
mother drank alcohol during pregnancy. These effects include
physical, mental, behavioral, and/or learning disabilities
with possible lifelong implications.
- Newborn
Screening Information - process of testing and screening
newborn babies for certain potentially dangerous conditions.
- 11q
Research & Resource Group - provides support and
organizational efforts for parents of all children with
11th chromosome abnormalities, including deletions (monosomy),
duplications (trisomy) and translocations
- National
Fragile X Foundation - contains over 3000 pages of
content on the genetic mutation called Fragile X including
fragile X syndrome (FXS), fragile X-associated tremor
ataxia syndrome (FXTAS) and premature ovarian failure
(POF).
- FRAXA
Research Foundation - mission is to find effective
treatments and a cure for all children and adults with
Fragile X. FRAXA has funded over $12 million in research
at universities around the world
- The
Hydrocephalus Association - share the goals of advocating
for quality healthcare for all people, promoting the importance
of medical research, and marshalling power of voluntary
health agencies like ours.
- Renee's
Communique's - to build the capacity of parents and
service providers to assist males with XXYY in leading
purposeful, productive lives
- Prader-Willi
Syndrome Association (USA) - an organization of families
and professionals working together to promote and fund
research, provide education, and offer support to enhance
the quality of life of those impacted by Prader-Willi
syndrome
- The
Comprehensive Williams Syndrome - seeks to create or enhance opportunities
in education, housing, employment and recreation for people
who have Williams Syndrome and other related or similar
conditions
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