Resource Links

The following Internet web sites are listed for your convenience. This is not all-inclusive, nor should it be considered an endorsement of the accuracy of, or support for, the information/views expressed in each site.

Maine Cleft Lip and Palate Program - Assisting Maine families with services and treatment for infants, children and youth with Cleft Lip/Palate
Telephone: (800) 698-3624 in Maine
                 (207) 287-4802

AboutFace External site disclaimer - Provides information and emotional support for individuals with facial differences and their families by linking people with similar experiences through a Peer Network.
Offers a newsletter and publications.
Telephone: (416) 597-2229 or 1-800-665-FACE

Cleft Advocate External site disclaimer - Online source for education and inspiration

Cleft Palate-Craniofacial Association (ACPA) External site disclaimer

Cleft Palate Foundation (CPF) External site disclaimer - Operates a 24-hour hotline assisting parents and adult patients with questions about cleft lip and palate and other craniofacial anomalies.  Distributes free educational publications, access feeding support.
Telephone: (800) 24-CLEFT

Let's Face It External site disclaimer - Offers an information and support network for people with facial differences and their families, and friends.  Publishes an annual directory.
Box 29972
Bellingham, WA 98228-1972
(360) 676-7325,

Wide Smiles External site disclaimer - WIDE SMILES was formed to ensure that parents of cleft-affected children do not have to feel alone. They offer support, inspiration, information and networking for families everywhere who may be dealing with the challenges associated with clefting.

SPIN (Special Parents Information Network) External site disclaimer - An agency for parents, parent organizations and professionals to work together to serve children with disabilities and their families.
Telephone: (800) 870-7746   (207) 623-2144 

Child Development Services (CDS) External site disclaimer - The Child Development Services (CDS) system is an Intermediate Educational Unit that provides both Early Intervention (birth - two years) and Free Appropriate Public Education (FAPE for ages three - five years) under the supervision of the Maine Department of Education.
Call above number for your local CDS site.
Telephone: (207) 624-6660

Disability Rights Center External site disclaimer - Disability Rights Center (DRC) is Maine's protection and advocacy agency for people with disabilities. It is a non-profit agency independent of state and federal government.
PO Box 2007
24 Stone St.
Augusta, ME 04338-2007
Telephone: (800) 452-1948   (207) 626-2774 

Velo-Cardio-Facial Syndrome Educational Foundation External site disclaimer - An international not-for-profit organization dedicated to providing support and information to individuals who are affected by Velo-Cardio-Facial syndrome, their families, physicians and other practitioners.

Let's Go! External site disclaimer - 5210 Tips, suggestions, recipes to help give you the tools to get started on your journey to good health!

KidsHealth External site disclaimer - Site designed for parents, children and teens with lots of good advice and activities

AdoptCleft External site disclaimer – Adopting cleft affected children group website

Cleft Palate Bottle Web Sites
Special Needs Feeders (Haberman) Bottles External site disclaimer

Pigeon - Cleft Baby Bottles External site disclaimer

The Mead Johnson Cleft Lip/Palate Nurser External site disclaimer